Hey Lollipop’s!  Today our story is slightly different in that it is more of an appeal for you wonderful people to head on over to https://www.facebook.com/aaronsbattle/ to have a look and support (if you can) Aaron’s Battle with Cancer.  You can support on Facebook or over on the web page https://aaronsbattle.com/

Aaron has a rare cancer and he and his family need your help to raise awareness and money to help him continue his fight.  I really hope in sharing their story Aaron carries on fighting and gets the help he needs. We wish him well. xxx

Aaron’s Battle

In August 2016 Aaron was diagnosed with a rare cancer called alveolar rhabdomyosarcoma, a soft tissue and bone cancer at just 28 years old.
After being misdiagnosed for so long by the time the cancer was detected behind his left cheek it had already spread throughout the soft tissue and bones in his body. We were told the cancer is very rare, extremely aggressive and incurable at this late stage. They told us that the visible tumours weren’t the only problem, as if things could get any worse, Aarons body would be full of cancer cells that are simply too small to show up on the scans until they grow into larger tumours. The cancer usually has a good initial response to treatment, but then tends to spread and grow quickly again afterwards. We did not ask for a time frame but have repeatedly been told it is extremely aggressive and fast growing.

Aaron has already been through 15 months of grueling treatment. He underwent one of the harshest chemotherapy regimes that exists, alongside 6 weeks of radiotherapy to his head, neck and spine. The side effects of this treatment were severe and led to many more weeks in the hospital hooked up to drips, pain relief and a feeding tube in order to recover. His throat and mouth were visibly burnt from the radiotherapy meaning he could no longer eat and some days couldn’t even speak. Throughout all of this he maintained a positive attitude and never stopped making us and the nurses laugh. The treatment worked well and we had a brief period where there was very little cancer left at all. If Aaron had not responded so well to this treatment it is highly unlikely that he would still be with us today. Unfortunately this quiet spell did not last long. His cancer grew and spread almost as soon as he stopped the first chemotherapy, causing further painful and life threatening complications and reminding us this isn’t a long term solution for him. He is currently undergoing more chemotherapy which is working to keep the cancer stable and improving at the moment but won’t last forever and makes him very ill.

Although Aaron is doing relatively well the treatment currently available to him on the NHS is not a long term solution. The cancer is aggressive and has a very high return rate, as we have already seen chemo and radiotherapy won’t stop this. We believe his only chance at long term survival is a treatment called immunotherapy. Unfortunately this treatment is very costly and must be obtained privately. This type of treatment is becoming commonplace in other countries and has proven to be very promising for Aaron’s type of cancer, but the rarity of rhabdomyosarcoma means that it likely won’t be available on the NHS for some years. We hope Aaron can find success with this treatment, paving the way for others to be able to obtain it in the UK.  Although the doctors have told Aaron his cancer is terminal, we will never give up hope and strongly believe if he can get this treatment it will give him many more years with the people he loves. It is for this reason we must ask for help in this stressful time. Any contribution made will be spent on treatment that has been chosen as a result of many weeks of research and professional advice. We believe this will be critical in saving Aarons life.

If you would like to send in your story of grief, loss, friendship, mental health or a story of hope please message me: blog@lottylollipop.com

Your story will be published here and on our Instagram feed and  Lotty Lollipop facebook page.  As a thank you we will also send you a Rainbow Fairy Wish free of charge.

We would love to hear from you.